Health Care Hackers
Presenting our research to a roomful, not just a row full, of rare-disease patients and caregivers was an extraordinary experience.
Numbers, Facts and Trends Shaping Your World
Read our research on:
Susannah Fox
Former Researcher
Susannah Fox is a former former Associate Director at the Pew Research Center’s Internet & American Life Project.
Publications
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presentation
What People Living With Rare Disease Can Teach Us
Susannah Fox presented research on how people, particularly those living with rare disease, use online health resources and what the rest of us can learn from them.
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report
Family Caregivers Online
Thirty percent of U.S. adults provide support to a loved one. The internet is a key information and communications resource for this front-line labor force.
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report
CureTogether acquired by 23andme
Grassroots contribution to health research just got a boost. Is it time for us to measure personal genetic testing?
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report
Bowling Alone, Healing Together
The American Journal of Managed Care recently published a commentary entitled, “Bowling Alone, Healing Together: The Role of Social Capital in Delivery Reform.”
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report
Video: peer-to-peer health care
A 5-minute video overview of peer-to-peer health care.
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report
Unpacking self-tracking
Pew Internet asked two questions about “self-tracking” in 2010 – how should we expand this area of our research?
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presentation
Health Datapalooza
Susannah Fox will serve as a “white hat” advisor to participants in the Health Data Initiative Forum.
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report
Just-in-time Information through Mobile Connections
86% of smartphone owners used their phone in the past month to make real-time queries to help them meet friends, solve problems, or settle arguments
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report
Mama birds: Catherine Fairchild Calhoun and Laurie Strongin
A conversation about rare disease, the impact of the internet, and love.